The original post was a mistake on my part! I misread and put FDA instead of WHO based on what was going around on twitter. I had no intention of spreading misinfo. Just thought it was an interesting piece of info and wanted to get tumblr’s take on it. Thanks to everyone sharing more info on the topic ☝🤓
hayley’s bg vocals in that instrumental part at like 3 minutes is chefs kiss
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happy disability pride month to people with rare or confusing clinical findings! including:
people who received test results their doctors did not understand!
people who had to get expensive and/or unusual testing, and the results didn’t provide clarity!
people who have abnormal test results, who’s doctors aren’t sure if the results have any significance, or what that significance is!
people who had to learn to read studies in order to research their conditions, because the information has not been made accessible to the general public through articles and informative sites!
people who can’t even find studies to read in the first place!
people who might never know if the results they have mean anything!
people with unexplained symptoms that could be related to an unusual test result, but they have no way of knowing!
people who are worried that their results could be pathogenic, but have no way of finding out!
sometimes, disability just isn’t simple. it is really hard to have something markedly different about your body that doesn’t make sense - not to you, not to professionals. when i was being tested for genetic disorders, they found that i had a duplication in one of my chromosomes, and my doctor told me that it could mean nothing, it could have caused some of my issues, or it could cause me issues in the future.
it was scary! it’s been almost two years, and i don’t know what it means. there isn’t a single case report or study on this duplication. it is deeply disquieting to think about. i don’t know what i’m meant to do, or if i can do anything at all. i have plenty of symptoms and features that could be related to it, but there is essentially no way for me to figure it out.
am i still trying to? hell yeah! am i going to try and get into contact with genetic specialists? hell yeah! but if nothing comes out of it, that’s fine. it isn’t a failing on my part, and it isn’t irrational for me to be concerned or upset about it.
your condition does not have to have a name, or a mayo clinic page, or even a study on it for it to be real. your concerns are valid, and you deserve love and support.
happy pride!!
ok if anything manages to top i can see you i will actually be ded
omg and when emma falls in love is followed by i can see you which is even gayer and i only just finished the first chorus omg
being a teenager when Taylor’s first few albums came out and all the punk/emo kids hating on her because their faves like Fall Out Boy and Panic! At The Disco and Paramore were all so much better and cooler than her…
and then being a young adult for the next chapter of her music and her transition into pop and all the indie-lovers looking down on her because their faves like Bon Iver and The National and Mumford & Sons were so much better and more sophisticated than liking Taylor Swift…
and now those same exact artists working with and for Taylor???? there is something sooooooo juicily vindicating about watching all the people who the people who looked down on Taylor fans looked up to working with and praising Taylor and her work.
